Since mid-2014 MRV participants have been completing Quality of Life (QOL) questionnaires at several time points: baseline; 3 months; 6 months and annually.
In 2022 the QOL database migrated to REDCap and questionnaires are now completed via email link. We believe this innovation will improve data collection, particularly for ongoing annual questionnaires.
PeterMac participants fill in all 3 of the QOL instruments. Other MRV sites only complete the QLQ30.
- Supportive Care Needs Survey (SCNS-SF)
- Two domains: health system and information; and patient care and support
- European Organisation for Research and Treatment of Cancer (EORTC) QLQ30;
- Functional Assessment of Cancer Therapy – Melanoma FACT-M