MRV recruits patients from the melanoma clinics at its five Victorian partner organisations. Over 3,500 people have agreed to participate in the study. Through participant generosity and belief in melanoma research MRV has a wide range of resources for researchers and clinician-researchers to utilise:
- Clinical Data – incorporates over 300 data fields per participant including: demographic; clinical; staging; surgery; molecular pathology
- Follow Up – up to 10 years of recurrence, treatment and survival data
- Bio Specimens – over 55,000 blood and tissue aliquots
- Quality of Life Data –
– Supportive Care Needs Survey (SCNS-SF) Two domains: health system and information; and patient care and support
– European Organisation for Research and Treatment of Cancer (EORTC) QLQ30;
– Functional Assessment of Cancer Therapy – Melanoma FACT-M - Medicare/Pharmaceutical Benefits Scheme (MBS/PBS) data linkage
– As of February 2022, 1,064 participants had consented to allow MRV access to their MBS/PBS data.